Fig. 1From: The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ)The road to people-centricity in biomedical research; Overall schematic representation of the people-centric methodology created for the development, refinement, and dissemination of the ImmunoCDGQBack to article page