Table 5 Summary of general principles, advice and education
From: Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa
Key D = theoretical/foundational Quality of evidence: 1: systematic review with high bias risk, 3 = non-analytic studies, case reports, case series 4 = expert opinion ✓ = recommended best practice based on the clinical experience of the guideline development group Section 5A | |||
|---|---|---|---|
Outcome/recommendation | Recommendation strength | Quality of evidence | Key references |
General principles | |||
Individuals should receive hand therapy care post operatively | D✓ | 3 | |
Recurrence can be expected, but may be delayed with hand therapy | D✓ | 3 | [45] |
Collaboration between individual/family, therapist, medical team is essential and should be coordinated | D✓ | 4 | |
Hand therapy should start around post op week two to three (with planning starting pre-op) | D✓ | 4 | |
Plans should be in place to manage pain during therapy and to manage obtaining supplies for the individual | D✓ | 4 | [74] |
Advice/education | |||
Preoperatively: Advise importance of participation and adherence to the post op rehabilitation for best surgical results | D✓ | 4 | |