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Table 1 Respondent characteristics for patients completing the online survey

From: Development of a patient journey map for people living with cervical dystonia

Characteristic

Survey response

Female/male, n (%)

12/3 (80%/20%)

Age (years), mean ± SD

54.1 ± 10.9

Age at diagnosis (years), mean ± SD

41.5 ± 9.6

Employed, n (%)

8 (53.3%)

Time since diagnosis, n (%)

 

 Within past 5 years

2 (13.3%)

 Within past 5–10 years

5 (33.3%)

 > 10 years ago

8 (53.3%)

First symptoms experienced at onset*

 

 Head and/or neck tilting/twisting

11 (73.3%)

 Neck spasms

3 (20.0%)

 Pain

6 (40.0%)

 Tremor

5 (33.3%)

  1. *Patients cited the first symptoms they recalled experiencing at onset (open question allowing multiple symptoms to be identified)