From: Development of a patient journey map for people living with cervical dystonia
Characteristic | Survey response |
---|---|
Female/male, n (%) | 12/3 (80%/20%) |
Age (years), mean ± SD | 54.1 ± 10.9 |
Age at diagnosis (years), mean ± SD | 41.5 ± 9.6 |
Employed, n (%) | 8 (53.3%) |
Time since diagnosis, n (%) | |
Within past 5 years | 2 (13.3%) |
Within past 5–10 years | 5 (33.3%) |
> 10 years ago | 8 (53.3%) |
First symptoms experienced at onset* | |
Head and/or neck tilting/twisting | 11 (73.3%) |
Neck spasms | 3 (20.0%) |
Pain | 6 (40.0%) |
Tremor | 5 (33.3%) |