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Table 4 Distribution of SEIQoL-DW cues from adult XLH patients over the five study visits

From: Concordance between the schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW) and the EuroQoL-5D (EQ-5D) measures of quality of life outcomes in adults with X-linked hypophosphatemia

S/N

Cues

Baseline

M3

M6

M9

M12

Total

1

Being appreciated

0

1

0

0

0

1

2

Faith and positive mindset

0

1

0

0

1

2

3

Family

7

1

0

0

0

8

4

Finances

0

1

1

1

2

5

5

Future

0

0

0

0

1

1

6

Health

1

2

1

0

1

5

7

Hobby and leisure

0

0

2

1

1

4

8

Holidays

0

0

0

0

1

1

9

House

0

0

0

1

0

1

10

Maintaining a normal life

0

0

2

0

0

2

11

Pets

0

1

0

2

1

4

12

Physical activity

1

0

1

2

0

4

13

Relationship

0

1

1

2

0

4

14

Social life

0

1

0

0

0

1

15

Support and volunteering

0

0

0

0

2

2

16

Work

1

1

2

1

0

5

Discrete cues elicited at visit (n)

4

9

7

7

8

 

Cues unique to the visit (n)

0

2

1

1

3