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Table 1 Children’s and parents’ sociodemographic data

From: Understanding disease symptoms and impacts and producing qualitatively-derived severity stages for MPS IIIA: a mixed methods approach

Category

At baseline interview (N = 22)

Child’s age at baseline site visit (months)

 Min–max

28–105

 Mean

61.4

Country (n)

 France

8

 UK

3

 Germany

6

 Netherlands

5

Child gender (n)

 Male

16

 Female

6

Parent interviewed (n)

 Mother only

9

 Mother and father

12

 Mother and friend

1

Child’s position in family (n)*

*Children’s half-siblings as considered in the determination of a child’s position in family

 Only child

5

 Oldest in family

6

 Youngest in family

7

 Middle child

4

Parents’ civil status (n)

 Living with a partner

21

 Single

1

Parents’ employment status (n) [N = 33]*

*Number of parents present at the interview excluding “friend” N = 33

 

 Full time

11

 Part time due to child

5

 Part time not due to child

6

 Unemployed due to child

7

 Sick leave

3

 Maternity leave

1