Table 3 Demographics and clinical characteristics of reproductive-aged female patients meeting inclusion criteria
|  | Total | Adolescents (12–21) | Adults (> 22) |
|---|---|---|---|
Number | 221 | 111 | 110 |
Age (mean ± SD) | 25.2 ± 11.3 | 16.2 ± 2.6 | 25.2 ± 9.3 |
Insurance (n, %) | Â | Â | Â |
 Private only | 117 (52.9) | 59 (53.2) | 58 (52.7) |
 Medicare only | 5 (2.3) | 1 (0.9) | 4 (3.6) |
 Medicaid only | 39 (17.6) | 22 (19.8) | 17 (15.5) |
 Self pay only | 1 (0.5) | 0 (0) | 1 (0.9) |
 Private + Medicare | 4 (1.8) | 1 (0.9) | 3 (2.7) |
 Private + Medicaid | 42 (19) | 26 (23.4) | 16 (14.5) |
 Medicaid + Medicare | 12 (5.4) | 2 (1.8) | 10 (9) |
 Private + Medicaid + Medicare | 1 (0.5) | 0 (0) | 1 (0.9) |
Race (n, %) | Â | Â | Â |
 African American | 25 (11.3) | 12 (10.8) | 13 (11.8) |
 Asian | 5 (2.3) | 3 (2.7) | 2 (1.8) |
 Hispanic | 14 (6.3) | 9 (8.1) | 5 (4.5) |
 White | 155 (70.1) | 69 (62.2) | 86 (78.2) |
 Other | 22 (10) | 18 (16.2) | 4 (3.6) |
Residence (n, %) | Â | Â | Â |
 Lives with parents/caregiver | 154 (69.7) | 103 (92.8) | 51 (46.3) |
 Lives independently | 64 (29) | 8 (7.2) | 56 (50.9) |
 Lives in group home | 3 (1.4) | 0 (0) | 3 (2.7) |
Intellectual disability (n, %) | 82 (37.1) | 46 (41.4) | 36 (32.7) |
Diagnosis (n, %) | Â | Â | Â |
 Aminoacidopathy | 41 (18.6) | 19 (17.1) | 22 (20) |
 Disorder of carbohydrate metabolism | 15 (6.8) | 11 (9.9) | 4 (3.6) |
 Fatty acid oxidation disorder | 21 (9.5) | 15 (13.5) | 6 (5.5) |
 Lysosomal storage disorder | 31 (14) | 9 (8.1) | 22 (20) |
 Mitochondrial disorder | 59 (26.7) | 28 (25.2) | 31 (28.2) |
 Organic acidemia | 22 (10) | 14 (12.6) | 8 (7.2) |
 Urea cycle disorder | 22 (10) | 7 (6.3) | 15 (13.6) |
 Other | 10 (4.5) | 8 (7.2) | 2 (1.8) |