Table 1 Characteristics of participants in the Delphi survey two
HP (n = 30) | Patients (n = 9) | Parents (n = 24) | ||
|---|---|---|---|---|
Profession (n/%) | Age of child (r, m) | 11–18 years (14.8) | 1–19 years (9.7) | |
Physician | 16 (53.3%) | Gender of child (n, %) | ||
Nutritionist | 8 (26.7%) | Female | 3 (33.3%) | 12 (50%) |
Psychologist | 6 (20%) | Male | 6 (66.7%) | 12 (50%) |
Country (n/%) | Diagnosis | |||
Switzerland | 8 (26.7%) | PKU | 3 (33.3%) | 10 (41.7%) |
Germany | 7 (23.4%) | OA | 2 (22.2%) | 9 (37.5%) |
Austria | 6 (20%) | UCD | 4 (44.5%) | 4 (16.6%) |
USA | 4 (13.3%) | MSUD | 0 | 1 (4.2%) |
Italy | 4 (13.3%) | Country (n/%) | ||
Netherlands | 1 (3.3%) | Switzerland | 7 (77.8%) | 18 (75%) |
Years of experience (n/%) | Austria | 2 (22.2%) | 6 (25%) | |
3–5 years | 3 (10%) | |||
> 5 years | 27 (90%) |