Caregiver outcomes (n = 22) | N (%) | Mean (SD) |
---|---|---|
WPAI | ||
Currently working for pay, n (%) | 16 (73) | – |
Absenteeism, mean (SD) | 16 (73) | 26.9 (40.1) |
Presenteeism, mean (SD) | 13 (59) | 40.0 (24.2) |
Overall work productivity impairment, mean (SD) | 13 (59) | 45.6 (25.6) |
Daily activity impairment, mean (SD) | 22 (100) | 48.6 (27.7) |
Employment status, n (%) | – | |
Full-time employed | 8 (36) | |
Part-time employed | 4 (18) | |
Self-employed | 4 (18) | |
Homemaker | 2 (9) | |
Other | 4 (18) | |
Impact on work, n (%) | ||
Yes, I have missed workdays | 8 (36) | – |
Workdays missed, mean (SD) | 8 (36) | 12.9 (19.30) |
No days missed, but productivity issues | 5 (23) | – |
No impact | 3 (14) | – |
Not applicable | 6 (27) | – |
Impact on stopping work, n (%) | ||
Yes, I have missed work years | 8 (36) | – |
Work years missed, mean (SD) | 8 (36) | 2.8 (1.5) |
No years missed | 12 (55) | – |
Not applicable | 2 (9) | – |
Impact on career, n (%) | – | |
Impact of PFIC on career building | 11 (50) | |
Alternate career choice | 5/11 (46) | |
Prevented career progression | 8/11 (73) | |
Prevented from working more hours | 8/11 (73) | |
Other | 6/11 (55) |