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Table 2 Impact of caregiving on WPAI and professional career

From: Impact of progressive familial intrahepatic cholestasis on caregivers: caregiver-reported outcomes from the multinational PICTURE study

Caregiver outcomes (n = 22)

N (%)

Mean (SD)

WPAI

  

 Currently working for pay, n (%)

16 (73)

 Absenteeism, mean (SD)

16 (73)

26.9 (40.1)

 Presenteeism, mean (SD)

13 (59)

40.0 (24.2)

 Overall work productivity impairment, mean (SD)

13 (59)

45.6 (25.6)

 Daily activity impairment, mean (SD)

22 (100)

48.6 (27.7)

Employment status, n (%)

 

 Full-time employed

8 (36)

 

 Part-time employed

4 (18)

 

 Self-employed

4 (18)

 

 Homemaker

2 (9)

 

 Other

4 (18)

 

Impact on work, n (%)

  

 Yes, I have missed workdays

8 (36)

  Workdays missed, mean (SD)

8 (36)

12.9 (19.30)

 No days missed, but productivity issues

5 (23)

 No impact

3 (14)

 Not applicable

6 (27)

Impact on stopping work, n (%)

  

 Yes, I have missed work years

8 (36)

  Work years missed, mean (SD)

8 (36)

2.8 (1.5)

 No years missed

12 (55)

 Not applicable

2 (9)

Impact on career, n (%)

 

 Impact of PFIC on career building

11 (50)

 

 Alternate career choice

5/11 (46)

 

 Prevented career progression

8/11 (73)

 

 Prevented from working more hours

8/11 (73)

 

 Other

6/11 (55)

 
  1. PFIC progressive familial intrahepatic cholestasis, SD standard deviation