Table 1 Number and characteristics of patients and clinicians
LSD | FD | GD | PD | MPSI | |
|---|---|---|---|---|---|
Patients | Number of patients | 5 | 5 | 5 | 5 |
Sex | Male (4) | Male (3) | Male (2) | Male (1) | |
Female (1) | Female (2) | Female (3) | Female (4) | ||
Age | |||||
Average years (SD) | 45.0 (4.0) | 6.8 (17.9) | 0.0 (16.5) | 29.0 (20.4) | |
Median [Min–Max] | 46 [40–50] | 65 [26–70] | 51 [30–68] | 21 [9–58] | |
Diagnosis time from the first visit | |||||
Average years (SD) | 8.9 (9.8) | 4.8 (7.1) | 17.6 (12.4) | 12.1 (16.0) | |
Median [Min–Max] | 5.0 [0.2–20] | 2.0 [0–15] | 19.5 [1.5–30] | 7.1 [0–34] | |
Specific Treatment | Yes (5) | Yes (4) | Yes (4) | Yes (3) | |
No (1) | No (1) | No (2) | |||
Clinicians | Number of Physicians | 9 | 6 | 5 | 5 |
Medical Area- Speciality | Internal Medicine (3) Nephrology (3) Cardiology (3) | Internal Medicine (4) Haematology (2) | Internal Medicine (2) Neurology (3) | Internal Medicine (3) Paediatrics neurology (2) | |
Years of experience in LSDs | |||||
Average (SD) | 12.2 (6.5) | 14.2 (8.7) | 7.4 (3.9) | 15.8 (7.0) | |
Median [Min–Max] | 11 [4–25] | 15 [5–25] | 8 [1–11] | 16 [8 – 25] |