Characteristic | Round 1 n = 23 | Round 2 n = 10 | Total n = 33 |
---|---|---|---|
Mean (range) age, years | 35.7 (13–67) | 50.9 (15–73) | 40.3 (13–73) |
Sex, n (%) | |||
Female | 14 (60.9) | 7 (70.0) | 21 (63.6) |
Ethnicity, n (%)* | |||
White | 11 (47.8) | 7 (70.0) | 18 (54.5) |
Ashkenazi Jewish | 11 (47.8) | 3 (30.0) | 14 (42.4) |
Other | 4 (17.4) | 0 | 4 (12.1) |
Highest educational level (adults only), n (%) | |||
Some high school | 1 (4.3) | 0 | 1 (3.0) |
High school diploma or General Educational Development (GED) | 3 (13.0) | 1 (10.0) | 4 (12.1) |
Some years of college | 3 (13.0) | 1 (10.0) | 4 (12.1) |
Certificate program | 1 (4.3) | 0 | 1 (3.0) |
University/college | 3 (13.0) | 2 (20.0) | 5 (15.2) |
Graduate or professional degree | 5 (21.7) | 4 (40.0) | 9 (27.3) |
Other | 1 (4.3) | 1 (10.0) | 2 (6.1) |
N/A or missing | 6 (26.1) | 0 | 7 (21.2) |
Mean (range) duration of disease, years | 26.2 (1–60) | 35.0 (14–63) | 26.8 (1–63) |
Disease severity (as rated by the recruiting clinician), n (%) | |||
Very mild | 1 (4.3) | 0 | 1 (3.0) |
Mild | 5 (21.7) | 2 (20.0) | 7 (21.2) |
Moderate | 14 (60.9) | 4 (40.0) | 18 (54.5) |
Severe | 3 (13.0) | 3 (30.0) | 6 (18.2) |
Very severe | 0 | 1 (10.0) | 1 (3.0) |