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Table 1 Principles and criteria used to build the PID Life Index

From: The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country

Principle Criteria
PID diagnosis Diagnosis rate
Biological diagnosis availability
Genetic diagnosis availability
Prenatal diagnosis availability
Newborn screening for SCID
Treatments Anti-infectious availability
Immunoglobulin availability
Vaccine availability
Curative treatments
Biological and targeted therapies
Plasma collection
Universal health coverage Diagnosis reimbursement
Anti-infectious reimbursement
Immunoglobulin reimbursement
Vaccine reimbursement
Curative treatments reimbursement
Biological and targeted therapies reimbursement
Specialised centres National PID specialised centre/network
Adult PID services
Transition care
National patient organisations Established national group in the country
Professional paid staff
Main working areas
Registries National PID registry
Bone marrow donor registry