The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country

Table 1 Principles and criteria used to build the PID Life Index

Principle	Criteria
PID diagnosis	Diagnosis rate
	Biological diagnosis availability
	Genetic diagnosis availability
	Prenatal diagnosis availability
	Newborn screening for SCID
Treatments	Anti-infectious availability
	Immunoglobulin availability
	Vaccine availability
	Curative treatments
	Biological and targeted therapies
	Plasma collection
Universal health coverage	Diagnosis reimbursement
	Anti-infectious reimbursement
	Immunoglobulin reimbursement
	Vaccine reimbursement
	Curative treatments reimbursement
	Biological and targeted therapies reimbursement
Specialised centres	National PID specialised centre/network
	Adult PID services
	Transition care
National patient organisations	Established national group in the country
	Professional paid staff
	Main working areas
Registries	National PID registry
Registries	Bone marrow donor registry

ISSN: 1750-1172