Table 1 Overview of outcome measures
Outcome measure | Target population | Cases (N) | Target threshold (%) | Fulfilment | Target threshold achieved |
|---|---|---|---|---|---|
1. Screening for PAVM | All HHT-patients | 180 | ≥ 90 | 100% (n = 180) | Yes |
2. Written advice on epistaxis | All HHT-patients with epistaxis | 151 | ≥ 90 | 66% (n = 99)1 26% (n = 40)2 40% (n = 59)3 | No |
3. Iron deficiency anaemia assessment | All HHT-patients and ≥ 12 years old | 167 | ≥ 70 | 80% (n = 133) | Yes |
4. Written advice on AB | All HHT patients, except 9 patients where PAVM was ruled out | 171 | 100 | 75% (n = 129)1 32% (n = 55)2 43% (n = 74)3 | No |
5. Written advice about pregnancy | All HHT-patients, and female ≥ 15 and ≤ 45 years old | 45 | 100 | 80% (n = 36)1 24% (n = 11)2 56% (n = 25)3 | No |