Table 3 Management strategies implemented by thirty-nine caregivers and their effectiveness reported in the online survey
From: Caregivers’ experience of sleep management in Smith–Magenis syndrome: a mixed-methods study
Level of improvement reported following implementation of strategy | |||||||
|---|---|---|---|---|---|---|---|
Not implemented | No improvement | Slight improvement | Somewhat significant improvement | Moderate improvement | Extremely significant improvement | Number who received professional input for strategy | |
Medication | 8 | 7 | 4 | 5 | 5 | 10 | - |
Examples listed | Acebutolol, alimemazine, aripiprazole, atenolol, atomoxetine, cannabidiol, chloral hydrate, clonidine hydrochloride, desmopressin, doxycycline, fluoxetine, guanfacine, melatonin, methylphenidate, omeprazole, promethazine, ramipril, risperidone, tasimelteon, trazodone | ||||||
Sleep hygiene | 12 | 8 | 5 | 7 | 4 | 3 | 12 |
Examples listed | Same routine, black out blind, earlier bedtime than peers, warm shower later afternoon | ||||||
Adapted sleeping environment | 17 | 4 | 1 | 6 | 3 | 8 | 9 |
Examples listed | Stair gates, removed furniture, council funded extension and house renovation, light switch on a timer | ||||||
Other | 36 | 0 | 0 | 1 | 0 | 2 | - |
Examples listed | Feeding through the night, adapting sleep arrangements to fit with child, holistic treatment | ||||||