Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

Fuerboeter, Mareike; Boettcher, Johannes; Barkmann, Claus; Zapf, Holger; Nazarian, Rojin; Wiegand-Grefe, Silke; Reinshagen, Konrad; Boettcher, Michael

doi:10.1186/s13023-021-02129-0

Orphanet Journal of Rare Diseases

Table 3 Prediction of psychosocial measures on children with rare congenital surgical diseases and their parents

From: Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

	Constant		Age		Gender		Education		Level of care		Time since last operation		Adjusted R²
	b	95% CI	b	95% CI	b	95% CI	b	95% CI	b	95% CI	b	95% CI	Adjusted R²
Mothers
QoL	2.34	[2.19, 2.53]	0.01	[− 0.01, 0.03]	0.01	[− 0.12, 0.14]	− 0.16	[− 0.29, − 0.02]	− 0.05	[− 0.17, 0.07]	0.01	[− 0.22, 0.04]	0.042
Mental health	0.27	[0.01, 0.53]	0.01	[− 0.03, 0.04]	0.09	[− 0.12, 0.29]	0.15	[− 0.06, − .36]	0.20	[0.01, 0.39]	− 0.02	[− 0.07, 0.03]	0.033
Children’s HRQoL	90.63	[83.88, 97.39]	− 1.03	[− 1.93, − 0.13]	− 0.81	[− 6.02, 4.41]	− 1.51	[− 6.89, 3.87]	− 9.30	[− 14.29, − 4.31]	0.68	[− 0.54, 1.89]	0.150
Children’s mental health	9.85	[8.09, 11.61]	0.33	[0.09, 0.57]	− 1.47	[− 2.83, − 0.11]	0.39	[− 1.01, 1.80]	1.39	[0.08, 2.69]	− 0.21	[− 0.53, 0.11]	0.159
Fathers
QoL	2.36	[2.21, 2.51]	0.01	[− 0.02, 0.03]	0.05	[− 0.08, 0.18]	− 0.11	[− 0.23, 0.02]	− 0.01	[− 0.14, 0.12]	0.01	[− 0.03, 0.04]	0.008
Mental health	0.23	[0.09, 0.38]	− 0.01	[− 0.03, 0.03]	0.01	[− 0.12, 0.12]	0.11	[− 0.01, − .23]	− 0.01	[− 0.12, 0.12]	− 0.01	[− 0.04, 0.02]	0.005
Children’s HRQoL	90.01	[84.68, 95.34]	− 1.58	[− 2.59, − 0.58]	0.13	[− 4.39, 4.66]	− 0.13	[− 4.52, 4.26]	− 5.95	[− 10.36, − 1.53]	1.67	[0.42, 2.92]	0.139
Children’s mental health	11.24	[9.18, 13.30]	0.26	[− 0.12, 0.65]	− 0.29	[− 2.04, 1.46]	0.19	[− 1.50, 1.89]	− 0.48	[− 2.18, 1.23]	− 0.44	[− 0.92, 0.04]	0.012

Bold values indicate statistical significance at the p < .05 level
Gender of child: female = 1, male = 0. Education: higher = 1, lower-middle = 0. Level of care: yes = 1, no = 0
CI confidence interval, QoL quality of life, HRQoL health-related quality of life

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ISSN: 1750-1172

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