Table 1 Sociodemographic and disease characteristics of the index and control group
Characteristics | Index group (n = 114 families) | Control group (n = 53 families) | ||
|---|---|---|---|---|
M | SD | M | SD | |
Patient’s age (years) | 4.2 | 3.33 | 4.3 | 3.25 |
Mother’s age (years) | 37.4 | 5.98 | 37.1 | 5.50 |
Father’s age (years) | 40.3 | 6.15 | 39.7 | 6.49 |
Number of children in family | 2.0 | 0.78 | 1.6 | 0.69 |
Number of surgeries due to disease | 4.4 | 4.21 | – | – |
Time since last surgery (years) | 2.6 | 2.51 | – | – |
Time since first surgery (years) | 3.8 | 3.04 | – | – |
Parents | n | % | n | % |
|---|---|---|---|---|
Parent’s gender (mothers/fathers) | 109/101 | 95.6/88.6 | 52/36 | 96.0/64.0 |
Marital status (mothers/fathers) | ||||
 Married/living together | 98/92 | 89.9/91.1 | 43/32 | 82.7/88.9 |
 Single | 9/7 | 8.3/6.9 | 6/2 | 11.5/5.6 |
 Divorced | 2/2 | 1.8/2.0 | 3/1 | 5.8/2.8 |
 Not stated | 0/0 | 0.0/0.0 | 0/1 | 0.0/2.8 |
Education (mothers/fathers) | ||||
 Lower-middle education | 32/42 | 29.4/41.6 | 9/6 | 17.3/16.7 |
 Higher education | 69/54 | 63.3/53.5 | 41/29 | 78.8/80.6 |
 Not stated | 8/5 | 7.3/5.0 | 2/1 | 3.8/2.8 |
Employmenta (mothers/fathers) | ||||
 Fully employed | 11/94 | 10.1/93.1 | 8/34 | 15.4/94.4 |
 Partly employed | 54/4 | 49.5/4.0 | 24/1 | 46.2.2/2.8 |
 No employment | 42/3 | 38.5/3.0 | 20/1 | 38.5/2.8 |
 Not stated | 2/0 | 1.8/0.0 | 0/0 | 0.0/0.0 |
Patients | n | % | n | % |
|---|---|---|---|---|
Patient’s gender | ||||
 Female | 44 | 38.6 | 24 | 45.3 |
 Male | 70 | 61.4 | 29 | 54.7 |
Patient receives level of careb | ||||
 Yes | 43 | 37.7 | – | – |
 No | 71 | 62.3 | – | – |
Patient rare disease | ||||
 Anorectal malformation | 30 | 26.3 | – | – |
 Biliary atresia | 14 | 12.3 | – | – |
 Congenital diaphragmatic hernia | 14 | 12.3 | – | – |
 Esophageal atresia | 27 | 23.7 | - | - |
 Hirschsprung’s disease | 29 | 25.4 | – | – |
VACTERL association | ||||
 Yes | 16 | 14.0 | – | – |
 No | 98 | 86.0 | – | – |