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Table 1 Sociodemographic and disease characteristics of the index and control group

From: Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

Characteristics Index group (n = 114 families) Control group (n = 53 families)
M SD M SD
Patient’s age (years) 4.2 3.33 4.3 3.25
Mother’s age (years) 37.4 5.98 37.1 5.50
Father’s age (years) 40.3 6.15 39.7 6.49
Number of children in family 2.0 0.78 1.6 0.69
Number of surgeries due to disease 4.4 4.21
Time since last surgery (years) 2.6 2.51
Time since first surgery (years) 3.8 3.04
Parents n % n %
Parent’s gender (mothers/fathers) 109/101 95.6/88.6 52/36 96.0/64.0
Marital status (mothers/fathers)
 Married/living together 98/92 89.9/91.1 43/32 82.7/88.9
 Single 9/7 8.3/6.9 6/2 11.5/5.6
 Divorced 2/2 1.8/2.0 3/1 5.8/2.8
 Not stated 0/0 0.0/0.0 0/1 0.0/2.8
Education (mothers/fathers)
 Lower-middle education 32/42 29.4/41.6 9/6 17.3/16.7
 Higher education 69/54 63.3/53.5 41/29 78.8/80.6
 Not stated 8/5 7.3/5.0 2/1 3.8/2.8
Employmenta (mothers/fathers)
 Fully employed 11/94 10.1/93.1 8/34 15.4/94.4
 Partly employed 54/4 49.5/4.0 24/1 46.2.2/2.8
 No employment 42/3 38.5/3.0 20/1 38.5/2.8
 Not stated 2/0 1.8/0.0 0/0 0.0/0.0
Patients n % n %
Patient’s gender
 Female 44 38.6 24 45.3
 Male 70 61.4 29 54.7
Patient receives level of careb
 Yes 43 37.7
 No 71 62.3
Patient rare disease
 Anorectal malformation 30 26.3
 Biliary atresia 14 12.3
 Congenital diaphragmatic hernia 14 12.3
 Esophageal atresia 27 23.7 - -
 Hirschsprung’s disease 29 25.4
VACTERL association
 Yes 16 14.0
 No 98 86.0
  1. aRefers to the last 12 months
  2. bRefers to the decision for the classification in the care insurance according to the German long-term care insurance