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Table 9 Recommendations to improve psychosocial care provision and access

From: Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

Sub-category

Description

Families

Provision of information regardless of demand, extension to all family members, strengthening and expanding self-help and respite-term care

Organization

Simplification of the application process, more cooperation between different funding bodies, strengthening of low-threshold services especially in the outpatient sector

Structural changes

Strengthening the integration of psychosocial support in the health system and promoting more inter-professional cooperation and networking