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Table 7 Reasons why psychosocial care is needed

From: Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

Sub-category

Description

Family matters

For all family members, situations requiring psychosocial support can arise for several reasons

Information and organizational support

Disease management, the organization of daily life, advice on legal and administrative issues, and exchange with other affected families are typical reasons for requesting psychosocial care