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Table 6 Disease-related situations in which psychosocial care is required

From: Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

Sub-category

Description

Diagnosis

Parents often seek help once the diagnosis has been made

Disease coping

The phase where families have adjusted to the diagnosis and are ready to make use of support

Everyday life

When acute situations have been overcome, or significant everyday life changes are approaching

Progression and crises

Any type of progression or crisis, which might not even be related to the disease