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Table 5 Utilization of psychosocial care

From: Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

Sub-category

Description

Single parents

Single parents are often particularly burdened and in need of support

Child with rare disease

The need for psychosocial support often increases with the age of the child

Mothers

Within a stable relationship, mothers often make more frequent use of psychosocial support than fathers

Socioeconomic background

More personal and financial resources often facilitate access

Disease coping

Families who are coping well with the child's condition are perceived to be more willing to use support services