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Table 3 Descriptive statistics of PROMIS parent proxy domains (N = 521)

From: Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks

Domain Tailored administration? No. items Min Max Mean SD Skewness Correlation between Sum Score and IRT T-Score
Fatigue Impact No 5 34.00 73.00 50.79 9.42 −0.33 0.98
Strength Impact No 4 35.00 68.00 50.13 9.28 0.03 0.99
Negative Affect No 9 31.77 75.83 50.32 9.39 −0.16 0.98
Sleep-Device Symptoms* Yes 4 4.00 18.00 8.77 3.68 0.30 NA
Cognitive Function No 9 22.00 63.00 50.30 9.41 −0.07 0.95
Upper Extremity Function No 5 34.00 66.00 50.18 9.60 −0.13 0.98
Positive Affect No 4 21.00 68.00 50.18 9.37 −0.47 0.99
Mobility* Yes 13 13.00 65.00 32.47 13.76 0.50 NA
Total number of items across domains for tailored administration
 Ambulatory   50       
 Transitional   51       
 Non-ambulatory   48       
  1. *Clinimetric index