Skip to main content

Table 3 Descriptive statistics of PROMIS parent proxy domains (N = 521)

From: Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks

Domain

Tailored administration?

No. items

Min

Max

Mean

SD

Skewness

Correlation between Sum Score and IRT T-Score

Fatigue Impact

No

5

34.00

73.00

50.79

9.42

−0.33

0.98

Strength Impact

No

4

35.00

68.00

50.13

9.28

0.03

0.99

Negative Affect

No

9

31.77

75.83

50.32

9.39

−0.16

0.98

Sleep-Device Symptoms*

Yes

4

4.00

18.00

8.77

3.68

0.30

NA

Cognitive Function

No

9

22.00

63.00

50.30

9.41

−0.07

0.95

Upper Extremity Function

No

5

34.00

66.00

50.18

9.60

−0.13

0.98

Positive Affect

No

4

21.00

68.00

50.18

9.37

−0.47

0.99

Mobility*

Yes

13

13.00

65.00

32.47

13.76

0.50

NA

Total number of items across domains for tailored administration

 Ambulatory

 

50

      

 Transitional

 

51

      

 Non-ambulatory

 

48

      
  1. *Clinimetric index