| |
Mean
|
SD
|
|---|
|
Variable
|
|
Number of People with DMD Caring for
|
1.1
|
0.4
|
|
Range
|
1–5
|
|
Number of Children
|
1.9
|
1.0
|
|
Range
|
1–8
|
|
Number of Children with DMD
|
1.1
|
0.3
|
|
Range
|
0–3
|
|
Number of Supports Living in the Home
|
2.1
|
0.8
|
|
Range
|
0–3
|
|
Age
|
12.9
|
6.6
|
|
Range
|
2–42
|
|
Years Cared for by this Caregiver
|
11.2
|
7.0
|
|
Range
|
0–42
|
| |
Frequency
|
%
|
|---|
|
Caregiver's Relationship to DMD Index Person
|
|
Parent
|
549
|
97
|
|
Sibling
|
3
|
1
|
|
Other Relative
|
9
|
2
|
|
Paid Caregiver
|
0
|
0
|
|
Other
|
5
|
1
|
|
Comorbidities, out of 11 presented
|
1.6
|
1.8
|
|
Range
|
0–9
|
| |
Frequency
|
%
|
|---|
|
DMD treatment
|
|
Deflazacort
|
216
|
41
|
|
Exondys 51
|
124
|
24
|
|
Prednisolone
|
101
|
19
|
|
Other
|
79
|
15
|
|
Missing
|
1
|
0
|
|
Lowes lab ambulatory status algorithm category
|
|
Non-ambulatory
|
217
|
42
|
|
Transitional
|
127
|
24
|
|
Ambulatory
|
150
|
29
|
|
Missing
|
27
|
5
|
|
Specific comorbidities*
|
|
Anxiety
|
188
|
36
|
|
Asthma
|
42
|
8
|
|
ADD or ADHD
|
85
|
16
|
|
Autism spectrum disorder
|
40
|
8
|
|
Depression
|
71
|
14
|
|
Diabetes
|
14
|
3
|
|
Epilepsy
|
14
|
3
|
|
Overweight
|
94
|
18
|
|
Learning disabilities
|
122
|
23
|
|
Scoliosis
|
81
|
16
|
|
Sleep disorder
|
82
|
16
|
- *A non-response was counted as the absence of the comorbidity in question
