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Table 2 Descriptive statistics of caregiver context and DMD care recipients (N = 521)

From: Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks

  Mean SD
Variable
 Number of People with DMD Caring for 1.1 0.4
  Range 1–5
 Number of Children 1.9 1.0
  Range 1–8
 Number of Children with DMD 1.1 0.3
  Range 0–3
 Number of Supports Living in the Home 2.1 0.8
  Range 0–3
 Age 12.9 6.6
  Range 2–42
 Years Cared for by this Caregiver 11.2 7.0
  Range 0–42
  Frequency %
Caregiver's Relationship to DMD Index Person
 Parent 549 97
 Sibling 3 1
 Other Relative 9 2
 Paid Caregiver 0 0
 Other 5 1
 Comorbidities, out of 11 presented 1.6 1.8
  Range 0–9
  Frequency %
DMD treatment
 Deflazacort 216 41
 Exondys 51 124 24
 Prednisolone 101 19
 Other 79 15
 Missing 1 0
Lowes lab ambulatory status algorithm category
 Non-ambulatory 217 42
 Transitional 127 24
 Ambulatory 150 29
 Missing 27 5
Specific comorbidities*
 Anxiety 188 36
 Asthma 42 8
 ADD or ADHD 85 16
 Autism spectrum disorder 40 8
 Depression 71 14
 Diabetes 14 3
 Epilepsy 14 3
 Overweight 94 18
 Learning disabilities 122 23
 Scoliosis 81 16
 Sleep disorder 82 16
  1. *A non-response was counted as the absence of the comorbidity in question