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Table 1 Descriptive Statistics of Caregivers (N = 521)

From: Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks

 

Mean

SD

Variable

  

 Age

41.5

8.9

  Range

21–72

Gender

 Male

126

24

 Female

395

76

Race

 Black

46

9

 White

437

84

 Other

38

7

Hispanic ethnicity

 Yes

57

11

 No

445

85

 Missing

19

4

Marital status

 Never married

30

6

 Married

413

79

 Cohabitation/domestic partner

37

7

 Separated

11

2

 Divorced

22

4

 Widowed

5

1

 Missing

3

1

 

Frequency

%

US Region

 South Atlantic

127

24

 Pacific

85

16

 East North Central

67

13

 Middle Atlantic

58

11

 West South Central

42

8

 East South Central

25

5

 Mountain

25

5

 West North Central

25

5

 New England

18

3

 Non-Contiguous

1

0

 Missing

48

9

 Comorbidities, out of 15 presented (mean, sd)

1.4

1.7

  Range

0–9

 Body Mass Index (mean, sd)

27.1

6.1

  Range

16.6–40.0

Specific comorbidities*

 Arthritis

72

14

 Asthma

47

9

 Back Pain

172

33

 Cancer now or in the past

18

4

 Depression

127

24

 Diabetes

19

4

 Heart Disease

11

2

 High Blood Pressure

45

9

 Insomnia

108

21

 Kidney Disease

3

1

 Liver Disease

5

1

 Lung Disease

3

1

 Stroke

3

1

 Ulcer or Stomach Disease

17

3

 Other

64

12

Smoking status

 Never Smoked

416

80

 Used to Smoke

49

9

 Some Days Currently

22

4

 Every Day Currently

31

6

 Missing

3

1

Work status

 Employed

289

55

 Unemployed

193

37

 Retired

10

2

 Disabled due to medical condition

9

2

 Missing

20

4

Hours Worked per Week

 Does not apply

231

44

 < 20

15

3

 20–29

39

7

 30–39

72

14

 40 + 

164

31

Level of education

 Less than 12th grade

6

1

 High school diploma

56

11

 Technical (Vocational) degree

62

12

 Some college

88

17

 2-year University degree

79

15

 4-year University degree

154

30

 Masters degree

47

9

 Doctoral degree

5

1

 Missing

24

5

  1. *A non-response was counted as the absence of the comorbidity in question