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Table 1 Descriptive Statistics of Caregivers (N = 521)

From: Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks

  Mean SD
Variable   
 Age 41.5 8.9
  Range 21–72
Gender
 Male 126 24
 Female 395 76
Race
 Black 46 9
 White 437 84
 Other 38 7
Hispanic ethnicity
 Yes 57 11
 No 445 85
 Missing 19 4
Marital status
 Never married 30 6
 Married 413 79
 Cohabitation/domestic partner 37 7
 Separated 11 2
 Divorced 22 4
 Widowed 5 1
 Missing 3 1
  Frequency %
US Region
 South Atlantic 127 24
 Pacific 85 16
 East North Central 67 13
 Middle Atlantic 58 11
 West South Central 42 8
 East South Central 25 5
 Mountain 25 5
 West North Central 25 5
 New England 18 3
 Non-Contiguous 1 0
 Missing 48 9
 Comorbidities, out of 15 presented (mean, sd) 1.4 1.7
  Range 0–9
 Body Mass Index (mean, sd) 27.1 6.1
  Range 16.6–40.0
Specific comorbidities*
 Arthritis 72 14
 Asthma 47 9
 Back Pain 172 33
 Cancer now or in the past 18 4
 Depression 127 24
 Diabetes 19 4
 Heart Disease 11 2
 High Blood Pressure 45 9
 Insomnia 108 21
 Kidney Disease 3 1
 Liver Disease 5 1
 Lung Disease 3 1
 Stroke 3 1
 Ulcer or Stomach Disease 17 3
 Other 64 12
Smoking status
 Never Smoked 416 80
 Used to Smoke 49 9
 Some Days Currently 22 4
 Every Day Currently 31 6
 Missing 3 1
Work status
 Employed 289 55
 Unemployed 193 37
 Retired 10 2
 Disabled due to medical condition 9 2
 Missing 20 4
Hours Worked per Week
 Does not apply 231 44
 < 20 15 3
 20–29 39 7
 30–39 72 14
 40 +  164 31
Level of education
 Less than 12th grade 6 1
 High school diploma 56 11
 Technical (Vocational) degree 62 12
 Some college 88 17
 2-year University degree 79 15
 4-year University degree 154 30
 Masters degree 47 9
 Doctoral degree 5 1
 Missing 24 5
  1. *A non-response was counted as the absence of the comorbidity in question