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Fig. 1 | Orphanet Journal of Rare Diseases

Fig. 1

From: Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks

Fig. 1

Box-and-Whiskers Plot of the Eight Parent-Proxy Domain Scores by the Four Age Groupings. This plot illustrates how the DMD-specific parent-proxy measure could be used in clinical practice. Plotting the DMD patient’s T-scores over time (y-axis) could be useful for pinpointing issues needing clinical attention. The study data show clear age-related decreases in functioning or increases in impact. Domains with largest age-related worsening were, in order of explained variance, mobility, sleep-device symptoms, fatigue impact, strength impact, upper extremity function, negative affect, positive affect, and cognitive function

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