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Table 2 Caregiver perspectives on the impact of pain on their child

From: Mucopolysaccharidosis type VI (Maroteaux-Lamy syndrome): defining and measuring functional impacts in pediatric patients

Pain limits my child’s… Never Almost never Some-times Almost always Always Total
Ability to complete schoolwork 3
(37.5 %)
1
 (12.5%)
3
(37.5)
1
(12.5%)
0 8
Ability to fall or stay asleep at night 2
(25%)
0 5
(62.5%)
0 1
(12.5%)
8
Participation in sports and recreational activities 2
(22.2%)
0 4
(44.4%)
2
(22.2%)
1
(11.1%)
9
  1. Not all participants responded to polling questions because of fatigue, care provision, or other reasons