Table 6 Evaluation of the access modalities to centers for rare diseases
Evaluation of the access modalities to centers for rare diseases from the point of view of the interviewees physicians | |
|---|---|
Negative | Access unknown Complex access arrangements Unreasonable laboratory requirements beforehand Waiting time until feedback for the access processing Waiting time until appointment allocation Referred to centers for rare diseases in the region |
Positive | Fast and easy access Short waiting times until feedback Short waiting times until the appointment allocation Routinely established allocation to certain centers for rare diseases |