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Table 5 Evaluation of the quality of cooperation and communication from the point of view of the interviewed physicians

From: Potentials and current shortcomings in the cooperation between German centers for rare diseases and primary care physicians: results from the project TRANSLATE-NAMSE

Evaluation of the quality of cooperation and communication from the point of view of the interviewed physicians

 

cooperation

communication

Negative

There is no cooperation as there is no access

Physician put the diagnosis in question

Waiting time until feedback for the report of findings

No transparency about processes and results in the center of rare diseases

No feedback

Unclear communication—> physician does not know who or how is being communicated

Positive

Therapy recommendation is useful

Friendly, professional cooperation

Rapid diagnostic communication

Positive effect of the centers on diagnostics

Better health care provision by the center of rare diseases

Short-term accessibility

Fast feedback

Regular findings reports

Information telephone available around the clock