Table 3 Desired support from the centers for rare diseases
What kind of support desires the physicians? | |
|---|---|
Deductive categories (derived from the interview guide) | More information on rare diseases Telephone contacts Better availability by the telephone contact person Co-care Therapy recommendation Diagnostic support |
Inductive categories | List with all center for rare diseases, their priorities and access modalities Center for rare diseases should inform about self-help groups The desire for more public relations from and for the center for rare diseases Feedback from center for rare diseases Better information for patients about their disease Low barriers to access to the center for rare diseases |