Table 1 Survey respondent demographics

Respondent type (total number of respondents = 342)

n (%)

Patient

264 (77.2%)

Parent

54 (15.8%)

Carer

17 (5%)

Partner

7 (2%)

Age distribution (n = 338)

Under 15

3 (0.9%)

15–25

50 (14.8%)

26–35

57 (16.9%)

36–45

53 (15.7%)

46–55

62 (18.3%)

56–65

58 (17.2%)

 > 65

55 (16.3%)

Female sex

62%

UK-based

45%

Condition

FRDA

204 (59.6%)

Inherited CA

55 (16%)

Idiopathic CA

70 (20.4%)

Episodic ataxia

12 (3.5%)