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Table 6 Number of studies in which Noonan syndrome spectrum disorder patients were engaged in a particular step in research over the last twenty years

From: Patient engagement in the design of clinical research in Noonan syndrome spectrum disorders: a scoping review

Year of publication Total number of studies (total n) Step 1 Identifying the general study (n) Step 2 Choosing the research topic (agenda setting) (n) Step 3 Formulating plan and technology (n) Step 4 Collecting data (n) Step 5 Analyzing and interpreting data (n) Step 6 Writing content and other ways of presenting data (n)
2000–2005 1     1   
2006–2010 4   2   1 1 3
2011–2015 5   2 1 2   4
2016–2020 8   5 1 3 1 4