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Table 1 The search strategy for Pubmed

From: Patient engagement in the design of clinical research in Noonan syndrome spectrum disorders: a scoping review

Noonan syndrome spectrum disorder (Type of) engagement Patient and their representation
Noonan syndrome
Noonan
Costello syndrome
Cardiofasciocutaneous syndrome
Cardio-facio-cutaneous syndrome
CFCS
Loose Anagen Hair syndrome
Loose anagen hair
Leopard syndrome
LEOPARD syndrome
RASopathy
Community participation
Policy making
Decision making
Patient participation
Cooperative behaviour
Cooperative
Recruit
Volunteer
Empowerment
Participation
Participate
Shared decision
Patient activation
Engagement
Collaboration
Cooperation
Patient
Patients
Family
Parent
Parents
Relatives
Patient federation
Patient representative organisation