Table 4 Domain 6 “Education and awareness on BS”
Questions | Answers n (%) |
|---|---|
Do you think you have fully understood the illness of your family member or partner? | Yes:60 (64%) |
No: 34 (36%) | |
Do you think you are sufficiently familiar with the condition of your family member or partner? | Yes: 52 (55%) |
No:21 (22%) | |
No opinion: 22 (23%) | |
Would you like to receive help in caring for your family member or partner? | Yes: 28 (30%) |
No: 49 (52%) | |
No opinion: 17 (18%) | |
Would you like to take part in a training programme to learn more about the illness and treatment of your family member or partner? | Yes: 64 (68%) |
No: 13 (14%) | |
No opinion: 17 (18%) | |
Do you know other people than your family member/friend/partner that were diagnosed with BS? | Yes: 47 (50%) |
No: 47 (50%) | |
Are you aware of the existence of a patient association for BS (SIMBA OVD)? | Yes: 88 (94%) |
No: 6 (6%) | |
Are you in contact or have you used the services of the association? | Yes: 39 (42%) |
No: 55 (58%) | |
If yes, was it useful or did you benefit from the services offered by the association? | Yes: 71 (75%) |
No: 9 (10%) | |
No opinion: 14 (15%) |