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Has the illness of your family member or partner an influence on your life?
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1—My life has not been influenced at all: 7 (7%)
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2: 19 (20%)
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3: 37 (39%)
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4: 21 (22%)
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5—My life has been completely influenced: 11 (12%)
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Do you organise your life according to the needs of your family member or partner?
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Yes: 61 (65%)
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No: 33 (35%)
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Do you feel stressed of having to take care of you family member or partner?
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1—I am not at all stressed by having to take care of my family member: 31 (33%)
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2: 26 (28%)
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3: 25 (27%)
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4: 6 (6%)
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5—I am incredibly stressful by having to take care of my family member: 6 (6%)
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Do you think that the illness of your family member or partner affects your relationship with your friends/family/partner?
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Yes: 21 (22%)
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No: 61 (65%)
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No opinion: 12 (13%)
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Does the health status of your family member or partner affect your mood?
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Never: 2 (2%)
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Rarely: 22 (23%)
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Sometimes: 29 (31%)
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Often: 36 (38%)
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Always: 5 (5%)
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How do you evaluate your mood?
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It tends to be stable: 31 (33%)
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It tends to be unstable: 12 (13%)
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I feel depressed: 2 (2%)
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It tends to be anxious: 25 (27%)
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It tends to be calm: 11 (12%)
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Alterations of anxiety moments of depression: 12 (13%)
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How long do you work in providing care to your family member or partner (e.g. help with everyday activities or treatment management)?
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Less than 1 h per day: 58 (62%)
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1–2 h a day: 15 (15%)
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Between 2 and 4 h per day: 9 (10%)
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More than 4 h per day: 12 (13%)
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Do you feel guilty because you would like to do more for your family member or partner?
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Never: 12 (13%)
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Rarely: 14 (15%)
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Sometimes: 24 (26%)
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Often: 32 (34%)
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Always: 11 (12%)
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Do you have to take care of your home and family when your family member or partner does not feel okay?
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Never: 3 (3%)
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Rarely: 16 (17%)
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Sometimes: 25 (27%)
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Often: 23 (24%)
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Always: 27 (29%)
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