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Table 2 Demographic characteristics and clinical information

From: Qualitative interviews to improve patient-reported outcome measures in late-onset Pompe disease: the patient perspective

Demographic characteristics and clinical information

Total (N = 13)

Age (years)

 Mean (SD)

56 (13)

 Median (range)

60 (31 − 71)

Gender, n (%)

 Male

7 (54)

 Female

6 (46)

Highest level of education completed, n (%)

 Some college or associate degree

12 (92)

 Graduate school degree

1 (8)

Age at first symptoms (years)

 Mean (SD)

21 (12)

 Median (range)

21 (3–40)

Age at first seeing a doctor for symptoms (years)

 Mean (SD)

38 (13)

 Median (range)

40 (14–59)

Years between first symptoms and seeing a doctor

 Mean (SD)

17 (12)

 Median (range)

13 (0–29)

Age at diagnosis (years)

 Mean (SD)

45 (14)

 Median (range)

49 (22–63)

Years between diagnosis and seeing a doctor

 Mean (SD)

7 (5)

 Median (range)

7 (1–15)

Years since diagnosis

 Mean (SD)

12 (10)

 Median (range)

8 (1–34)

  1. SD standard deviation