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Table 2 Demographic characteristics and clinical information

From: Qualitative interviews to improve patient-reported outcome measures in late-onset Pompe disease: the patient perspective

Demographic characteristics and clinical information Total (N = 13)
Age (years)
 Mean (SD) 56 (13)
 Median (range) 60 (31 − 71)
Gender, n (%)
 Male 7 (54)
 Female 6 (46)
Highest level of education completed, n (%)
 Some college or associate degree 12 (92)
 Graduate school degree 1 (8)
Age at first symptoms (years)
 Mean (SD) 21 (12)
 Median (range) 21 (3–40)
Age at first seeing a doctor for symptoms (years)
 Mean (SD) 38 (13)
 Median (range) 40 (14–59)
Years between first symptoms and seeing a doctor
 Mean (SD) 17 (12)
 Median (range) 13 (0–29)
Age at diagnosis (years)
 Mean (SD) 45 (14)
 Median (range) 49 (22–63)
Years between diagnosis and seeing a doctor
 Mean (SD) 7 (5)
 Median (range) 7 (1–15)
Years since diagnosis
 Mean (SD) 12 (10)
 Median (range) 8 (1–34)
  1. SD standard deviation