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Table 1 Participant demographics and disease characteristics

From: Development of the Myasthenia Gravis (MG) Symptoms PRO: a case study of a patient-centred outcome measure in rare disease

  STEP 1: Wave 1
N (%)
STEP 1: Wave 2
N (%)
STEP 2
N (%)
Gender
Female 15 (50) 20 (67) 27 (63)
Male 15 (50) 10 (33) 16 (37)
Age, years
Mean 64.2 66.9 51.9
SD 13.7 13.4 15.1
Range 26–85 24–84 25–81
Region
UK 30 (100) 30 (100)
Canada 11 (26)
Europe 23 (53)
USA 9 (21)
Ethnicity
Caucasian 29 (97) 29 (97) 39 (91)