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Table 4 Symptoms experienced by patients

From: The patient experience of Wilson disease: a conceptual model based on qualitative research

 

Wave 1

Wave 2

Wave 3

P1

P2

P3

P4

P5

P6

P7

P8

P9

P10

P11

Total number of neurological symptoms

0

0

6

10

7

9

0

0

13

12

8

Total number of psychiatric symptoms

2

6

6

8

7

10

0

2

11

5

7

Total number of hepatic symptoms

7

22

9

13

15

18

7

12

15

13

7

Total

9

28

21

31

29

37

7

14

39

30

22

Neurological load

0%

0%

29%

32%

24%

24%

0%

0%

33%

40%

36%

Psychiatric load

22%

21%

29%

26%

24%

27%

0%

14%

28%

17%

32%

Hepatic load

78%

79%

42%

42%

52%

49%

100%

86%

39%

43%

32%

  1. Cells that are not bolded represent patient group 1 (hepatic and some psychiatric symptoms); bolded cells represent patient group 2 (neurological, psychiatric, and hepatic symptoms)