From: Executive functions and quality of life in children with neurofibromatosis type 1
Quality of life scoresa | Children with NF1 | Healthy controls | t(df)b | p Valueb | Cohen’s d | ||||
---|---|---|---|---|---|---|---|---|---|
n | Mean | (SD) | n | Mean | (SD) | ||||
Physical wellbeing | |||||||||
Children | 40 | 48.87 | 9.70 | 56 | 52.88 | 9.86 | 1.981 (85.01) | 0.051 | 0.409 |
Parents | 40 | 45.48 | 7.87 | 56 | 50.53 | 9.69 | 2.815 (92.37) | 0.006 | 0.573 |
Psychological wellbeing | |||||||||
Children | 40 | 51.77 | 8.19 | 56 | 54.33 | 10.27 | 1.360 (92.79) | 0.177 | 0.276 |
Parents | 40 | 47.51 | 11.46 | 56 | 50.62 | 9.65 | 1.400 (74.88) | 0.166 | 0.294 |
Moods and emotions | |||||||||
Children | 39 | 56.38 | 12.51 | 56 | 60.09 | 9.34 | 1.572 (66.31) | 0.121 | 0.336 |
Parents | 40 | 54.20 | 11.98 | 56 | 58.92 | 8.95 | 2.104 (68.57) | 0.039 | 0.446 |
Self-perception | |||||||||
Children | 39 | 56.35 | 10.10 | 56 | 56.43 | 9.61 | 0.039 (79.28) | 0.969 | 0.008 |
Parents | 40 | 49.57 | 10.44 | 56 | 49.89 | 7.89 | 0.162 (69.13) | 0.872 | 0.034 |
Autonomy | |||||||||
Children | 39 | 46.28 | 10.22 | 56 | 49.58 | 9.96 | 1.564 (80.55) | 0.122 | 0.327 |
Parents | 40 | 43.47 | 8.99 | 56 | 44.77 | 7.41 | 0.751 (73.74) | 0.455 | 0.158 |
Parental relations and home life | |||||||||
Children | 39 | 47.68 | 9.01 | 56 | 50.58 | 11.13 | 1.400 (90.83) | 0.165 | 0.286 |
Parents | 40 | 42.84 | 10.86 | 56 | 46.41 | 9.551 | 1.669 (77.26) | 0.099 | 0.349 |
Social support and peers | |||||||||
Children | 39 | 46.01 | 14.74 | 56 | 52.15 | 11.55 | 2.178 (68.78) | 0.033 | 0.464 |
Parents | 39 | 37.30 | 12.37 | 56 | 44.89 | 9.82 | 3.196 (69.45) | 0.002 | 0.680 |
School environment | |||||||||
Children | 39 | 53.40 | 12.38 | 56 | 58.21 | 10.02 | 2.007 (70.44) | 0.049 | 0.426 |
Parents | 39 | 46.36 | 9.98 | 56 | 53.15 | 7.84 | 3.553 (68.90) |  < 0.001 | 0.756 |
Social acceptance | |||||||||
Children | 39 | 49.52 | 11.97 | 56 | 52.02 | 7.65 | 1.149 (59.34) | 0.255 | 0.249 |
Parents | 40 | 46.84 | 10.99 | 56 | 50.76 | 8.73 | 1.875 (71.73) | 0.065 | 0.395 |