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Table 2 Scores on the Kidscreen-52 quality of life assessment for children with NF1 and healthy controls

From: Executive functions and quality of life in children with neurofibromatosis type 1

Quality of life scoresa

Children with NF1

Healthy controls

t(df)b

p Valueb

Cohen’s d

n

Mean

(SD)

n

Mean

(SD)

Physical wellbeing

Children

40

48.87

9.70

56

52.88

9.86

1.981 (85.01)

0.051

0.409

Parents

40

45.48

7.87

56

50.53

9.69

2.815 (92.37)

0.006

0.573

Psychological wellbeing

Children

40

51.77

8.19

56

54.33

10.27

1.360 (92.79)

0.177

0.276

Parents

40

47.51

11.46

56

50.62

9.65

1.400 (74.88)

0.166

0.294

Moods and emotions

Children

39

56.38

12.51

56

60.09

9.34

1.572 (66.31)

0.121

0.336

Parents

40

54.20

11.98

56

58.92

8.95

2.104 (68.57)

0.039

0.446

Self-perception

Children

39

56.35

10.10

56

56.43

9.61

0.039 (79.28)

0.969

0.008

Parents

40

49.57

10.44

56

49.89

7.89

0.162 (69.13)

0.872

0.034

Autonomy

Children

39

46.28

10.22

56

49.58

9.96

1.564 (80.55)

0.122

0.327

Parents

40

43.47

8.99

56

44.77

7.41

0.751 (73.74)

0.455

0.158

Parental relations and home life

Children

39

47.68

9.01

56

50.58

11.13

1.400 (90.83)

0.165

0.286

Parents

40

42.84

10.86

56

46.41

9.551

1.669 (77.26)

0.099

0.349

Social support and peers

Children

39

46.01

14.74

56

52.15

11.55

2.178 (68.78)

0.033

0.464

Parents

39

37.30

12.37

56

44.89

9.82

3.196 (69.45)

0.002

0.680

School environment

Children

39

53.40

12.38

56

58.21

10.02

2.007 (70.44)

0.049

0.426

Parents

39

46.36

9.98

56

53.15

7.84

3.553 (68.90)

 < 0.001

0.756

Social acceptance

Children

39

49.52

11.97

56

52.02

7.65

1.149 (59.34)

0.255

0.249

Parents

40

46.84

10.99

56

50.76

8.73

1.875 (71.73)

0.065

0.395

  1. aStandardized T score (M = 50, SD = 10); lower scores indicate poorer quality of life
  2. bAll values shown correspond to the degrees of freedom, t and p corrected (Welch correction)