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Fig. 1 | Orphanet Journal of Rare Diseases

Fig. 1

From: The de novo FAIRification process of a registry for vascular anomalies

Fig. 1

Workflow of the de novo FAIRification process of a registry for vascular anomalies. The workflow is divided into five ‘phases’: pre-FAIRification, facilitating FAIRification, data collection, generating FAIR data in real-time, and using FAIR data. The phases are further specified by ‘steps’ indicating practical FAIRification tasks. Abbreviations: electronic Case Report Form (eCRF), Electronic Data Capture (EDC), Resource Description Framework (RDF; machine-readable language), FAIR Data Point (FDP)

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