Table 3 Functional abilities by median age

Communication

0.10 (4, 23)

Effectively communicates with everyone (N = 1, 4%)

3

Effectively communicates with adults (N = 11, 39%)

8 (4.5–11, max = 12.5)

Effectively communicates with familiar people (N = 7, 25%)

15.5 (7–16, max = 19)

Inconsistently communicates (N = 7, 25%)

13 (9–15, max = 26)

Seldom communicates (N = 2, 7%)

4 (3.5–5, max = 6)

Fine motor

0.42 (1, 29)

Holds large objects (N = 4, 13%)

7 (2–12, max = 15.5)

Pincer grasp (N = 27, 87%)

8 (5.5–14, max = 26)

Gross motor

0.83^b

Spearman correlation between age and FAQ score (N = 30)

r_s = -0.04

Academic skills

0.09 (1, 27)

Yes (N = 16, 55%)

11 (7.5–13.7, max = 26)

No (N = 13, 45%)

5.83 (3–8, max = 19)

Autism diagnosis

0.63 (2, 28)

Diagnosis (N = 12, 39%)

9.5 (5.5–11.5, max = 16.5)

Features (N = 11, 35%)

13 (6.5–15, max = 18.5)

No diagnosis (N = 8, 26%)

5.5 (3–10.5, max = 26)

Epilepsy diagnosis

0.05 (1, 30)

Yes (N = 17, 53%)

9 (7–16.5, max = 26)

No (N = 15, 47%)

5 (3.5–11, max = 15.5)

Toileting

0.24 (2, 25)

Independent (N = 7, 25%)

11.5 (8–14.5, max = 16.5)

Partially dependent (N = 11, 39%)

11 (7–13, max = 26)

Completely dependent (N = 10, 36%)

5 (4–11, max = 15.5)

Eating

0.06 (3, 25)

Independent (N = 15, 52%)

11 (5.5–14.5, max = 26)

Some assistance (N = 8, 28%)

12 (8–15, max = 19)

Considerable assistance (N = 2, 7%)

5.5 (4–6.5, max = 8)

Dependent (N = 4, 14%)

3.3 (2–4, max = 6)

Nocturnal awakenings

0.46 (5, 24)

6–7 nights/week (N = 1, 4%)

15

3–5 nights/week (N = 3, 12%)

8 (6.5–9.5, max = 11)

1–2 nights/week (N = 7, 27%)

6 (4–9.5, max = 13)

< 1 night/week (N = 5, 19%)

8 (3–11, max = 16.5)

Never (N = 10, 39%)

11 (8–15.5, max = 26)