Panellist demographics | Number of panellists, n (%) |
---|---|
Professional roles of panellists | |
Neurologist | 6 (60.0) |
Metabolic specialist | 1 (10.0) |
Geneticist | 1 (10.0) |
Paediatric metabolic specialist | 1 (10.0) |
Other* | 1 (10.0) |
Place of work of panellists | |
Specialist centre/department | 7 (70.0) |
Local hospital | 2 (20.0) |
Other† | 1 (10.0) |
Country panellists practice in | |
Italy | 3 (30.0) |
Israel | 2 (20.0) |
Turkey | 2 (20.0) |
France | 1 (10.0) |
The Netherlands | 1 (10.0) |
USA | 1 (10.0) |
Number of patients treated in the past 10 years | |
≥ 21 patients | 4 (40.0) |
16–20 patients | 1 (10.0) |
11–15 patients | 2 (20.0) |
6–10 patients | 1 (10.0) |
≤ 5 patients | 2 (20.0) |
Panellists’ experience in treating adult and paediatric patients | |
Adult patients only | 4 (40.0) |
Adult and paediatric patients | 6 (60.0) |
Years of experience in treating patients with CTX | |
≥ 21 years | 3 (30.0) |
16–20 years | 2 (20.0) |
11–15 years | 0 (0.0) |
6–10 years | 3 (30.0) |
≤ 5 years | 2 (20.0) |