Table 1 Question types and consensus thresholds used in questionnaires
Question type | Description | Consensus definition | Delphi questionnaire round |
|---|---|---|---|
Profiling Questions | Six profiling questions were included to understand the panellists’ background, perspectives and experience of CTX | N/A | N/A |
Numeric | Panellists were asked to respond with a single value e.g. “Please indicate the number of times per year that adult and paediatric patients should be monitored for the types of symptoms described below” | Not used to determine consensus, but used to inform more specific questions generated for the Round 2 questionnaire | Round 1 |
Open-Ended | Panellists were asked to provide a free text answer (i.e. there are no options to select from and the panellist can add any response in as much detail as they wish) | Not used to determine consensus, but used to inform more specific questions generated for the Round 2 questionnaire | Round 1 |
Likert Scale | Panellists were asked to select their level of agreement with a statement e.g. “Please specify your level of agreement with the following statements by selecting an option from the dropdown list (1–Strongly disagree; 6–Strongly agree)” | Consensus defined as ≥ 70% of panellists choosing 1–2 (disagreement) or 5–6 (agreement) | Round 1, 2 and 3 |
Ranking | Panellists were asked to rank the options e.g. “Please rank these four examinations in order of importance” | Consensus defined as ≥ 70% of panellists choosing the same ranking position for individual options in the question (e.g. ranking position 1). As a small number of panellists only provided partial responses for ranking questions (i.e. not all options were ranked) in Round 1, ranking questions were not used to determine consensus in this round* | Round 1, 2 and 3 |
Proportion | Panellists were asked to select the proportion (%) category, that corresponds to the question being asked e.g. “Please indicate the proportion of paediatric patients that present with the following symptoms, prior to a CTX diagnosis (0–24%; 25–49%; 50–74%; 75–100%)” | Consensus defined as ≥ 70% of panellists choosing the same proportion (%) category (e.g. 0–24%) | Round 2 and 3 |