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Table 6 Impacts on parent daily well-being

From: A qualitative study of the impacts of having an infant or young child with achondroplasia on parent well-being

n, % reporting impact/issue

Parent reports by child age

 < 12 months (n = 5)

12 to < 24 months (n = 10)

Total (n = 15)

Impacts on physical health

1

20%

5

50%

6

40%

  Tired/exhausted

1

20%

4

40%

5

33%

  General health issues

0

0%

2

20%

2

13%

Work/productivity issues

3

60%

7

70%

10

67%

  Missed work time

3

60%

4

40%

7

47%

  Changed work schedule

2

40%

2

20%

4

27%

  Stopped work

0

0%

3

30%

3

20%

  Reduced work hours

1

20%

1

10%

2

13%

Social/other impacts

      

  Friendships/social connections through a community of people with dwarfism

4

80%

5

50%

9

60%

  Support from family/friends

3

60%

4

40%

7

47%

  Limit social life/activities

2

40%

3

30%

5

33%

  Stigma/ignorance

1

20%

3

30%

4

27%

  Strained relationships

1

20%

0

0%

1

7%

Impacts on families

      

  Strain in the family

4

80%

5

50%

9

60%

  Increased family closeness

3

60%

4

40%

7

47%

  Family travel or vacations

1

20%

4

40%

5

33%

  Limit/adapt family activities

1

20%

3

30%

4

27%