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Table 4 Impacts on parent emotional well-being

From: A qualitative study of the impacts of having an infant or young child with achondroplasia on parent well-being

n, % reporting impact/issue

Parent reports by child age

 < 12 months (n = 5)

12 to < 24 months (n = 10)

Total (n = 15)

Feel stressed/overwhelmed

3

60%

7

70%

10

67%

Initial period of shock/grief

4

80%

5

50%

9

60%

Feel depressed/sad

2

40%

4

40%

6

40%

Feel anxious/nervous

2

40%

3

30%

5

33%

Feel grateful

1

20%

2

20%

3

20%

Increased knowledge of achondroplasia

1

20%

2

20%

3

20%

Focus on the positive

1

20%

2

20%

3

20%

Acceptance of child’s condition

1

20%

1

10%

2

13%

Feel guilty

1

20%

1

10%

2

13%

Feel happy/experience joy

0

0%

2

20%

2

13%

Put things in perspective

0

0%

2

20%

2

13%

Increased empathy/understanding

0

0%

1

10%

1

7%

Normalize/achondroplasia is “part of life”

0

0%

1

10%

1

7%

Desensitize (e.g., to hurtful comments of others)

0

0%

1

10%

1

7%