n, % reporting impact/issue | Parent reports by child age | |||||
---|---|---|---|---|---|---|
< 12 months (n = 5) | 12 to < 24 months (n = 10) | Total (n = 15) | ||||
Feel stressed/overwhelmed | 3 | 60% | 7 | 70% | 10 | 67% |
Initial period of shock/grief | 4 | 80% | 5 | 50% | 9 | 60% |
Feel depressed/sad | 2 | 40% | 4 | 40% | 6 | 40% |
Feel anxious/nervous | 2 | 40% | 3 | 30% | 5 | 33% |
Feel grateful | 1 | 20% | 2 | 20% | 3 | 20% |
Increased knowledge of achondroplasia | 1 | 20% | 2 | 20% | 3 | 20% |
Focus on the positive | 1 | 20% | 2 | 20% | 3 | 20% |
Acceptance of child’s condition | 1 | 20% | 1 | 10% | 2 | 13% |
Feel guilty | 1 | 20% | 1 | 10% | 2 | 13% |
Feel happy/experience joy | 0 | 0% | 2 | 20% | 2 | 13% |
Put things in perspective | 0 | 0% | 2 | 20% | 2 | 13% |
Increased empathy/understanding | 0 | 0% | 1 | 10% | 1 | 7% |
Normalize/achondroplasia is “part of life” | 0 | 0% | 1 | 10% | 1 | 7% |
Desensitize (e.g., to hurtful comments of others) | 0 | 0% | 1 | 10% | 1 | 7% |