Table 3 Parent caretaking responsibilities associated with achondroplasia
n, % reporting impact/issue | Parent reports by child age | |||||
|---|---|---|---|---|---|---|
 < 12 months (n = 5) | 12 to < 24 months (n = 10) | Total (n = 15) | ||||
Managing child's medical care/treatment | 5 | 100% | 9 | 90% | 14 | 93% |
Obtaining adaptations or appropriate items for child (e.g., buying or adapting clothing, toys, car seat) | 5 | 100% | 6 | 60% | 11 | 73% |
Monitoring child to avoid complications from achondroplasia (e.g., body positioning, head/neck/back support, breathing) | 5 | 100% | 5 | 50% | 10 | 67% |
Extra time caring for child because of achondroplasia (e.g., feeding, carrying) | 3 | 60% | 6 | 60% | 9 | 60% |
Advocating for child/educating others about achondroplasia | 3 | 60% | 6 | 60% | 9 | 60% |
Finding childcare/babysitting that meets child's needs | 2 | 40% | 4 | 40% | 6 | 40% |