Table 4 Characteristics of responders to the survey regarding their loss to follow-up status
Missing data | Total (N = 47) | Lost to follow-up (N = 14) | Not lost to follow-up (N = 33) | p value | |
|---|---|---|---|---|---|
Demographic characteristics | |||||
Age, years | 0 | 21.0 [20.0–22.0] | 20.5 [20.0–22.0] | 21.0 [20.0–22.0] | 0.58 |
Female sex | 0 | 29 (61.7) | 13 (92.9) | 16 (48.5) | 0.01 |
Professional status | 0.19 | ||||
High school | 1 (2.1) | 0 (0.0) | 1 (3.0) | ||
College | 36 (76.6) | 10 (71.4) | 26 (78.8) | ||
Professional activity | 6 (12.8) | 1 (7.1) | 5 (15.2) | ||
Not working because of disability | 2 (4.3) | 2 (14.3) | 0 (0.0) | ||
Not working | 2 (4.3) | 1 (7.1) | 1 (3.0) | ||
Education level | 1 | 0.97 | |||
Primary/high school education | 25 (54.3) | 7 (53.9) | 18 (54.5) | ||
College/university education | 21 (45.7) | 6 (46.1) | 15 (45.5) | ||
Marital status | 0 | > 0.99 | |||
Single | 42 (89.4) | 13 (92.9) | 29 (87.9) | ||
Married/common law | 5 (10.6) | 1 (7.1) | 4 (12.1) | ||
Change of city for studies | 0 | 25 (53.2) | 7 (50.0) | 18 (54.5) | > 0.99 |
Data on the period of adolescence/transition | |||||
Embarrassment or complex due to malformation | 1 | > 0.99 | |||
Yes, absolutely | 20 (42.5) | 6 (46.2) | 14 (42.4) | ||
Yes, rather | 10 (21.7) | 3 (23.0) | 7 (21.2) | ||
No, not really | 8 (17.4) | 2 (15.4) | 5 (15.2) | ||
Not at all | 8 (17.4) | 2 (15.4) | 6 (18.2) | ||
Want to stop follow-up | 1 | 0.72 | |||
Yes, absolutely | 7 (15.2) | 3 (23.1) | 4 (12.1) | ||
Yes, rather | 7 (15.2) | 2 (15.4) | 5 (15.2) | ||
No, not really | 9 (19.6) | 3 (23.1) | 6 (18.2) | ||
Not at all | 23 (50.0) | 5 (38.4) | 18 (54.5) | ||
Patients satisfied with follow-up | 11 | 31 (86.1) | 8 (88.9) | 23 (85.2) | > 0.99 |
Regularity of appointments | 13 | > 0.99 | |||
Adapted | 25 (75.7) | 6 (75.0) | 19 (79.1) | ||
Not enough | 6 (15.2) | 1 (12.5) | 5 (20.8) | ||
Too frequent | 3 (9.1) | 1 (12.5) | 2 (8.3) | ||
Psychological follow-up | 1 | 5 (10.6) | 1 (7.1) | 4 (12.5) | > 0.99 |
Change of site during monitoring | 1 | 22 (47.8) | 9 (69.3) | 13 (40.6) | 0.20 |
Age at change of site | 2 | 16.0 [16.0–17.5] | 16.0 [15.5–17.5] | 16.0 [16.0–17.8] | |
Decision to change site | 3 | > 0.99 | |||
Good time | 16 (84.2) | 7 (87.5) | 9 (81.8) | ||
Too soon | 3 (15.8) | 1 (12.5) | 2 (18.2) | ||
Too late | 0 (0.0) | 0 (0.0) | 0 (0.0) | ||
Change in support | 0 | 0.29 | |||
Yes, absolutely | 3 (13.6) | 1 (11.1) | 2 (15.4) | ||
Yes, rather | 7 (31.8) | 5 (55.6) | 2 (15.4) | ||
No, not really | 7 (31.8) | 2 (22.2) | 5 (38.4) | ||
Not at all | 5 (22.7) | 1 (11.1) | 4 (30.8) | ||
Data for the current (post-transition) period | 0.66 | ||||
Embarrassed or annoyed by the malformation | 0 | ||||
Yes, absolutely | 12 (25.5) | 3 (21.4) | 9 (27.3) | ||
Yes, rather | 9 (19.1) | 2 (14.3) | 7 (21.2) | ||
No, not really | 8 (17.0) | 4 (28.6) | 4 (12.1) | ||
Not at all | 18 (38.3) | 5 (35.7) | 13 (39.4) | ||