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Table 2 Scores of patients and care-givers in SF-36

From: A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China

  Respondents Healthy populations
Patients Care-givers Hubei [27] Shanghai [28] USA [29] Canada [30]
n = 259 n = 1061 n = 2249 n = 919 n = 2474 n = 9423
Mean (SD) 95% CI Mean (SD) 95% CI Mean (SD) Mean (SD) Mean (SD) Mean (SD)
PF 52.5 (34.8) 48.3, 56.6 70.2 (31.1) 68.4, 72.1 90.6 (15.4) 89.7 (14.8) 84.2 (23.3) 85.8 (20.0)
RP 26.8 (39.6) 21.0, 31.6 57.6 (46.0) 55.8, 60.3 79.5 (34.7) 92.8 (22.6) 81.0 (34.0) 82.1 (33.2)
BP 65.5 (32.0) 61.6, 69.3 82.7 (28.1) 81.0, 84.4 85.6 (18.4) 94.6 (13.8) 75.2 (23.7) 75.6 (23.0)
GH 32.6 (21.3) 30.0, 35.1 46.2 (22.7) 44.9, 47.6 69.6 (21.3) 68.8 (19.4) 72.0 (20.3) 77.0 (17.7)
VT 35.6 (22.5) 32.9, 38.3 46.2 (22.7) 44.9, 47.6 70.3 (17.1) 71.8 (18.3) 60.9 (21.0) 65.8 (18.0)
SF 33.3 (43.0) 28.2, 38.5 63.3 (25.1) 61.8, 64.8 86.9 (17.3) 94.3 (12.1) 83.3 (22.7) 86.2 (19.8)
RE 33.0 (42.8) 27.7, 38.2 55.8 (47.1) 53.0, 58.6 76.5 (38.5) 95.1 (20.6) 81.3 (33.0) 84.0 (31.7)
MH 41.4 (23.6) 38.6, 44.3 49.6 (22.1) 48.3, 50.9 72.7 (16.8) 81.8 (14.7) 74.7 (18.0) 77.5 (15.3)