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Table 1 Participant characteristics (parents)

From: The parental perspective of thalassaemia in Bangladesh: lack of knowledge, regret, and barriers

Variables n %
Caregiver (total) 365 100
Mother 212 58.1
Father 153 41.9
Type of marriage of parents
Arranged 311 85.21
Love 54 14.79
Consanguineous marriage
Yes 59 16.16
No 306 83.84
Father’s education
No formal education 40 11
Primary 96 26.3
Secondary 47 12.9
Higher secondary 73 20
Graduate 109 29.9
Mother’s education
No formal education 42 11.5
Primary 123 33.7
Secondary 61 16.7
Higher secondary 76 20.8
Graduate 63 17.3
Monthly family income*
 < $177 132 36.2
$177–295 93 25.5
$295–590 87 23.8
 > 590 53 14.5
No. of children
1 child 78 21.4
2 child 153 41.9
 > 2 child 134 36.7
No. of thalassaemic child
1 child 302 82.7
2 child 60 16.4
 > 2 child 3 0.8
Thalassaemic patient in extended family
Yes 80 21.9
No 277 75.9
Don’t know 8 2.2
Thalassaemia caused a death in extended family
Yes 82 22.5
No 272 74.5
Don’t know 11 3
Heard about thalassaemia before the diagnosis in child
Yes 11 3
No 354 97
Screening of thalassaemia before marriage?
Yes 0 0
No 365 100
  1. *1 USD equels to 84.75 BDT