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Table 1 Participant characteristics (N = 109)

From: Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Characteristics n
Sex (men/women) 54/55
Age in years (Mean (SD)) 52.8 (14.2)
Known genetic defect 57
SPG3a 4
SPG4 36
SPG5a 2
SPG7 3
SPG8 3
SPG10 2
SPG17 1
SPG31 5
SPG72 1
Affected first-degree relatives 83
Duration of spasticity symptoms (years)  
 1–5 years 21
 5–10 years 21
 10–15 years 16
 More than 15 years 51
Micturation problems 49
Use of electrical wheelchair outdoors 29
Use of walking aids outdoors 50
Walking ability between 100 and 1000 m without walking aids 13
Non-neurological comorbidities  
 COPD 6
 Diabetes 1
 Hypertension 9
 Joint disorders 13
 Cardiac problems 4
 Other 7
Employment  
 Full-time work 27
 Part-time work 14
 Self-employed 8
 Student 3
 Retired 20
 Unemployed 10
 Occupational incapacity 27
  Fully disabled (100%) 21
  Mostly disabled (66–99%) 6