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Table 1 Participant characteristics (N = 109)

From: Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Characteristics

n

Sex (men/women)

54/55

Age in years (Mean (SD))

52.8 (14.2)

Known genetic defect

57

SPG3a

4

SPG4

36

SPG5a

2

SPG7

3

SPG8

3

SPG10

2

SPG17

1

SPG31

5

SPG72

1

Affected first-degree relatives

83

Duration of spasticity symptoms (years)

 

 1–5 years

21

 5–10 years

21

 10–15 years

16

 More than 15 years

51

Micturation problems

49

Use of electrical wheelchair outdoors

29

Use of walking aids outdoors

50

Walking ability between 100 and 1000 m without walking aids

13

Non-neurological comorbidities

 

 COPD

6

 Diabetes

1

 Hypertension

9

 Joint disorders

13

 Cardiac problems

4

 Other

7

Employment

 

 Full-time work

27

 Part-time work

14

 Self-employed

8

 Student

3

 Retired

20

 Unemployed

10

 Occupational incapacity

27

  Fully disabled (100%)

21

  Mostly disabled (66–99%)

6