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Table 5 Indirect costs to caregivers for a 3-month period (in 2019 Euro)

From: Direct and indirect costs and cost-driving factors of Tuberous sclerosis complex in children, adolescents, and caregivers: a multicenter cohort study

Indirect costs components n1 Mean costs SD2 Minimum Median Maximum 95% CI Estimated annual costs3
Maternal indirect costs 96 2813 3950 0 215 11,241 2221; 3394 11,252
 Quit work 24 1466 3796 0 0 11,241 916; 2016 5864
 Reduction of working hours 49 1109 2136 0 0 8774 808; 1438 4436
 Days off due to TSC 41 238 628 0 0 4300 153; 332 952
Paternal indirect costs 48 372 1345 0 0 11,241 193; 586 1488
 Quit work 2 122 1169 0 0 11,241 0; 306 488
 Reduction of working hours 7 86 531 0 0 5621 22; 169 344
 Days off due to TSC 41 163 452 0 0 3440 101; 233 652
Total parents 111 3184 4326 0 645 22,482 2533; 3811 12,736
  1. 95% CI = 95% Confidence interval using the bootstrap bias corrected and accelerated method
  2. 1Parents of working age
  3. 2Standard deviation
  4. 3Estimation based on the mean costs in three months multiplied by four