Table 2 Sign and symptom concept frequency: Pediatric reports (N = 18)

Physical signs and symptoms

Fatigue/tiredness (n = 17)*

Muscle weakness (n = 14)

Physical developmental delay (n = 10)

Gastrointestinal signs and symptoms

Eating small quantities (n = 11)

Eating selectively (n = 8)

Eating difficulty (n = 7)

Immune system signs and symptoms

Neutropenia (n = 7)

Pain signs and symptoms

Muscle pain(n = 5)

Headache (n = 5)