Table 1 Demographic and self-reported clinical characteristics of CEI and CDI participants
Participants | Mean age ± SD (range) | Race | Symptom onset (age) |
|---|---|---|---|
Concept elicitation interviews (N = 33) | |||
Pediatrics (n = 18) | 8.6 ± 3.9 (2.5–15.0) | White: n = 15 (83.3%) | < 6 yrs: n = 15 (83.3%) |
Black or African American: n = 1 (5.6%) | 6–12 yrs: n = 3 (16.7%) | ||
Other: n = 2 (11.1%) | |||
Adults (n = 15) | 22.9 ± 5.8 (16.0–34.0) | White: n = 14 (93.3%) | < 6 yrs: n = 13 (86.7%) |
Black or African American: n = 1 (6.7%) | ≥ 18 yrs: n = 2 (13.3%) | ||
Cognitive debriefing interviews (N = 24) | |||
Adolescents (n = 12) Participants from the CEIs (n = 3) | 13.8 ± 1.2 (11.97–15.45) | White: n = 9 (75.0%) | < 6 yrs: n = 12 (100.0%) |
Black or African American: n = 2 (16.7%) | |||
Other: n = 1 (8.3%) | |||
Adults (n = 12) Participants from the CEIs (n = 8) | 22.9 ± 6.1 (16.0–34.9) | White: n = 12 (100.0%) | < 6 yrs: n = 10 (83.3%) |
6–12 yrs: n = 2 (16.7%) | |||